Tues. June 19 - Rejection

Posted by Theresa Nguyen on

Location: Ottawa

Health status: same

Whelp, the last 2ish weeks of waiting has passed and our limbo state has ended. Our hospital decided that they don’t want to risk doing Maeve’s Gtube surgery. 

Yupppppppp - ya heard. After multiple consultations with different surgeons/anesthesiologists  and getting the thumbs up from many people, we got confirmation yesterday that the head of cardiovascular surgery thinks the surgery is too risky. Maeve’s pacemaker wires sit right along the place where a Gtube could be placed. No one feels comfortable intervening should an emergency arise during surgery. 

🤦🏻‍♀️🤦🏻‍♀️🤦🏻‍♀️🤦🏻‍♀️🤦🏻‍♀️🤦🏻‍♀️🤦🏻‍♀️🤦🏻‍♀️🤦🏻‍♀️🤦🏻‍♀️🤦🏻‍♀️🤦🏻‍♀️🤦🏻‍♀️🤦🏻‍♀️

Dana and I are a bit stunned. There was no alternative course suggested. I’m waiting for my rage and bitterness to subside before I recall the doctors and “pitch” the need for a Gtube again. I suspect another trip to Toronto will be their suggestion. Aggggghhhhh. 

Other than that news, Maeve has been doing superb. When the weather is good, we’re ouutside walking a bunch which keeps her happy. She’s getting incredibly strong with each passing day. No hints of crawling or bum scootching. I suspect with everyone catering to her every need, she’s never clued into the concept of why she would need to exert herself to get stuff. When I try to encourage her to move, she just smirks at me with such certainty, “I know you’re gonna get that for me, b*!\?”

Or maybe I’ve been listening to too much Tiffany Haddish and projecting my 15 year old Blacknese wishes upon Maeve....

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Comments


  • T, just sending love from Toronto. Think of you all often and hope that little Maeve is well <3

    Vanessa Freeman on
  • T! I just read your latest blog post. I can’t be in your shoes to feel what you must be feeling and even from where I stand I felt anger in what the doctors have come back with. How unbelievably disappointed you and Dana must be :-( Sending you loving vibes to embrace the moments that make you smile and hope for the ability to deliver a persuasive pitch once your anger calms. Hoping most of all for Maeve to continue to stay strong. Lots of love xoxo

    Katrina on

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