Location: Toronto

Health status: stable

Busy few days - Dana and family came down for the weekend. Rosie made a lovely “About Me” board for Maeve. 

All of Maeve’s chest hardware has been removed successfully and her hand IVs came off. She’s thrilled to have her hands free again! She’s already tried ripping out her oxygen prongs forcing the nurse to put socks on her hands  

Dana loves watching her scar heal. What started off as a flappy foldover of skin has now slowly wiggled its way into a smooth line. The incisions from her chest drains look like mini belly buttons which Rosie took one look at and said, “Ew”. 

The doctors are still puzzled about what is causing her fluctuating fevers and vomiting. Maybe a morphine withdrawal side effect, some infection they haven’t found or just plain old teething. I have a feeling it’s teething 🤞🏼

I had a long meeting with a nurse in hopes of replacing Maeve’s nasal feeding tube with a G-tube that goes straight into her stomach. Everyone was in agreement life would be much easier with a G-tube. Unfortunately, Maeve’s new pacemaker perfectly covers her stomach making it impossible to do a G-tube 🤦🏻‍♀️

We will have to fatten her up before space can be made. 

Personal highlights this week for me include lots of stress shopping (did you know Ellen Degeneres has a shoe line!?), seeing Black Panther and, in the next hour, Avengers Infinity War!