Saturday, April 21

Posted by Theresa Nguyen on

Location: Toronto
Health status: stable
Still sedated and on breathing support.
Maeve is still spiking a fever. Every hour or so an ice pack is put on her head. She cools down quickly which is a good sign. Her cooling mat was removed and received a cleansing wipe down. 
Surgery: Monday morning
Parents: exhausted beyond measure. Left Maeve after lunch and took a mental and emotional break. 
(Theresa) My eyes felt like they were going to burst any second. I timidly asked the day nurse whether she thought Maeve was stable enough for me to leave for the day. I needed a mental and emotional break from all that had happened. The nurse hurriedly nodded and said to leave. Absolutely nothing was planned for today other than letting Maeve rest. So I left and I didn’t feel the heart pounding guilt I usually feel when separated from Maeve. I had a restful day of walking along the beach, bookstore browsing, seeing my friends and a blissful, uninterrupted sleep. The worst thing I could do in this situation is isolate myself and I’m proud that I prioritized my energy into taking a break.
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Friday, April 20

Posted by Theresa Nguyen on

Location: Toronto
Health status: total surprise heart crash
After accidentally ordering 2 ubers, I marched into the hospital bright and early. A smiling nurse greeted me with news that Maeve had been scream crying for me for the last 2 hours. Her “stranger danger” fear was in full force. 
I lumbered through a morning of holding her and changing a hundred diapers of small sharts (aka. poop-farts). Needless to say, I was counting down the hours until Dana’s arrival with the truck and extra clothes. 
As the morning progressed, I started noticing Maeve was getting more agitated. She couldn’t settle herself, kept retching and reached a screaming volume I had never heard. 
The team was fast to respond trying all different ways and tests to see what was going on. At the time their response didn’t feel fast. I kept repeating to anyone that was near by, “This isn’t normal. Something is wrong”. I was met with reassuring, “Yes, we know. Something is very wrong”.
In hindsight, I think the nurses were quietly escalating Maeve’s status behind my back.
Finally, one particular doctor took a very assertive stance. She refused to let anyone touch Maeve. 
“She needs to calm down! Any agitation is putting stress on her heart and she doesn’t need that!” I vaguely remember her commanding. 
The doctor paced the tiny room, blocking any people that wanted to examine or poke Maeve. Out of my peripheral I heard her say in a low tone, “Let’s get the resuscitation cart in here. I want us to be prepared for anything”.
Carts started wheeling in. People started filling the edges of the room. Me and the bedside nurse were doing everything we could to soothe Maeve. The edges of my eyes started burning as I tried not to panic. “Holy fuck…. it’s happening again”, my mind started repeating.
Suddenly I was flanked by 4 doctors and was told they were going to do a procedure immediately to get lines into Maeve’s artery and vein. They needed to give a series of drugs to prevent heart from failing. I was told to stay with Maeve and keep doing what I was doing. 
Everyone started gowning up. Maeve’s IV rack went from one drip machine to seven. Soon Maeve was doped up. I was shuffled back a row, gowned and found myself in the odd position of being next to the room’s only light switch. 
Doctor: “Lights on please”.
Me: “Uhhhh” (I click the switch).
Doctor: “Lights off please”.
Me: (click)
I spent the next 30 minutes doing exactly that. The procedure took over an hour. Half way through I left realizing my dizziness was due to the fact I hadn’t eaten anything other than a bagel 9 hours ago.
Dana met up as I was mid-sandwich bite. He later told me I was the same grey as Maeve’s torso. He knew immediately why I hadn’t responded to any of his texts during his drive up. 
“She crashed again”. 
Eventually, we were let back in to see Maeve. Our little munchkin looked like a character from The Matrix with lines coming out of her thigh. 
“She’s not good”, said the staff doctor. “Remember how I said if we need to put in a breathing tube we run the risk of cardiac arrest? Well, we need to put in a breathing tube. She needs whatever help she can get to take the load of her heart.”
He spent some time explaining the change of plans that would need to take place given Maeve’s sudden crash. They would need to do surgery as soon as possible. The next 2 hours carried the highest risk of cardiac arrest in which case there was very little intervention left other than putting her on an ecmo machine. 
The on-call surgeon, a wizen looking gentleman, came over to explain what repair they were going to attempt with surgery. The words “high possibility of death” was said at least 5 times along with “stroke”, “heart won’t restart”…
Soon the breathing tube was put in. No crash.
One hour passed. No crash.
A fever spike. No crash.
Two hours…
Blood work was showing Maeve’s status was improving. 
Around 11pm, our doctor told us to get some sleep. “Maeve’s in a spot where I think you should feel comfortable enough to get some sleep. You’ve got a long road ahead of you”.
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Thursday, April 19

Posted by Theresa Nguyen on

Location: Ottawa → Toronto
Health status: S’okay
The next morning, after a 20 min dash into the house to grab whatever clothing my hands touched, I jumped onto the stretcher with Maeve straddled in my lap. We were loaded into the bright orange helicopter for a nauseous 1.5 hour flight. The paramedics were hilarious and I enjoyed chatting and listening to all the gossip. There was a big scandal a few years ago when the CEO bought what’s basically the Ferrari version of helicopters. While very nice to have it was completely inappropriately outfitted including having the stretcher lift too high that nobody could preform CPR in flight. 
Maeve fell asleep half way through the ride along with my right arm pinned under her weight unamused face
Our transfer to ICU was uneventful. More familiar faces including “Dr. Mermaid” (nicknamed by the girls for her bright, multicolored nail polish). Toronto’s ICU is different from Ottawa’s. In Ottawa, every patient has a private room. In Toronto, most rooms have 4+ beds a chairs that don’t decline. I was encouraged to go home and sleep. The plan was to move Maeve to the observation floor the next day. That ward expects parents to stay with their kids full time. 
My cousin picked me up and I was able to relax with some wine, laughs and stories. 
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Wednesday, April 18

Posted by Theresa Nguyen on

Location: Ottawa
Health status: Warning signs begin
We noticed Maeve’s torso was a dull, grey color during bath time (normally her favorite part of the day). We were quickly slotted in for a echo at the beginning of the day. 
I had enough mama intuition to bring 6 hours worth of milk bottles. Not enough foresight though to pack myself snack though. 
By noon o’clock, we were told that Maeve needed to get admitted and it’d be in her best interest to get to Toronto as soon as possible. Her body’s ability to tolerate her leaky heart was inching towards its peak. 
Maeve was still acting relatively normal (minus the fact she may be teething) so I was a bit surprised and I pushed back a bit to say that we could just drive up. Getting admitted and put under observation is super stressful on Maeve who has entered the stranger=danger phase. Being poked and prodded every 3 hours could not be conducive to keeping her stable. The biggest lesson I’ve learned from our time in hospitals is to always advocate for your kid. Don’t assume the doctors and staff know best. 
I gave in when I saw the worry in Maeve’s doctors eyes though. Luckily, we received a celebrity welcoming with many familiar faces popping in to say HI! and coo over Maeve. Many had memories of cuddling her when she was freshly born waiting for her pacemaker. Others remembered tenderly caring for her during her cardiac arrest last summer. 
I settled in for a sleepless night in the hospital. 
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25 Activities to do with your Elf on the Shelf

Posted by Theresa Nguyen on

Note: This page will get updated as I get new ideas.
What you'll need:
25 Activities to do with your Elf
  1. Make Christmas pancakes (include either food coloring or sprinkles)
  2. Draw the elf a picture
  3. Read a Christmas book Get $10 to buy a Christmas book and pass it to a friend when you’re done!
  4. Pick names for Secret Santa Buy ingredients to make slime
  5. Get 2 boxes of candy canes. Share one box with the neighbourhood.
  6. Write a Christmas story (include a handmade booklet)
  7. Write a letter to Santa
  8. Surprise kids with a puzzle
  9. Watch a Christmas movie
  10. Sort through old toys and donate 
  11. Decorate Christmas tree
  12. Make Christmas cookies and deliver to neighbours
  13. Christmas bath bombs
  14. Tickets to some trampoline place
  15. Make paper snowflakes
  16. Gift of Christmas socks
  17. Write a Christmas wish for the world and hang it on the tree
  18. Build a snowman (include a snowman kit with raisins, carrots, scarves and mitts)
  19. Walk around the neighbourhood and find the most festive house. Give them a card or homemade trophy.
  20. Family hot chocolate night (include a kit with marshmallows + whip cream)
  21. Make an ice cream snowman (include vanilla ice cream and stuff from previous snowman kit)
  22. Go skating
  23. Gift of Santa hats or antlers for the family
  24. Open one Christmas gift of your choosing
  25. Farewell gift from Elf - TBD
My kids weren't too enamoured with the Elf until she started delivering her notes in silly ways. Take the time to place the Elf in a funny way to elicit some giggles from your kids.
Or, you can just do this brilliant parenting win.
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